Karen has a decade of experience writing about topics in the health sciences, psychology, and integrative medicine. She completed her Master’s Degree in psychology at the University of Hartford where she focussed on health behavior and research methods. She has training in wellness coaching, yoga and mindfulness, and clinical health research. Karen is a member of the American Society of Journalists and Authors.
The marketing claims for essential oils would have you believe the right blend of oils could cure just about anything that ails you, or at the least soothe your symptoms. It’s not any different for Autism Spectrum Disorder. Claims range from certain oils having the ability to calm and soothe, or to focus a child’s mind or behavior. But experimenting with essential oils on your own can put a child in harms way: Some children may have an allergic reaction or even have a seizure when exposed to certain oils. It’s always best to use essential oils under the guidance of a certified clinical aromatherapist or naturopathic physician experienced with using essential oils with children who have ASD.
For those of you who want to know more, let’s focus on 3 important questions:
What is an Essential Oil?
An essential oil (EO) is the natural fragrant essence extracted from different parts of a plant: flowers, leaves, bark, roots, fruit peel, and berries. The oil is the most concentrated and potent of plant extracts—up to 75-100 times more than dried herbs.
A single essential oil contains hundreds of chemical components, each one having unique properties of its own. In Europe, where standards for EO are much stricter than in the U.S., these components have to be listed on product labels as naturally occurring elements (versus added ingredients). In short, essential oils are very complex substances whose integrity and purity are affected by the time of harvest, method of harvesting, extraction process, and storage process—even before the product is bottled and shipped for retail sale.
Essential oils have been used for centuries throughout the world for everything from skin care to treatment for serious health conditions. In Europe, EO are used in both spa and medicinal treatments. In the U.S., essential oils came into vogue in spa treatments but have had exponential growth as over-the-counter ‘medicinal remedies’. It’s important to note that in the U.S., the FDA does not regulate EO for medicinal use the way it does prescription drugs but it does regulate the claims an EO manufacturing company can make about an oil.
How does an essential oil work?
The theory behind essential oils is based on the power of the sense of smell. Scent, by way of the olfactory nerve, can trigger emotions and memories. For example, the smell of fresh baked apple pie brings up a holiday memory. The neural receptors for scent are linked to the areas of the brain strongly associated with emotion and memory—both positive and negative. The premise for essential oils is that their individual or combined aroma can trigger an emotional or physical response, such as becoming more relaxed, being better able to focus on a task, or feeling more energized. These effects on mood or mental state occur in two ways: either through inhaling their scent through a diffuser or applying an oil in diluted form diluted form directly to the skin, usually on pulse points or in bath water.
It is very important to understand that essential oils should never be applied directly to the skin without a carrier oil or lotion for dilution; nor should any essential oil ever be taken internally in food or beverage unless under supervision of a licensed healthcare practitioner.
Do Essential Oils have Proven Health Benefit for Children with Autism?
In the last few years, parenting blogs have exploded with testimonials about the use of certain EO for children with Autism. Some of these posts are nothing short of miraculous. These case reports are a start (just like Freud’s case studies of individual patients were a start). Every child is different; what seems beneficial for one child could be life-threatening for another. This is why research is so vitally important to the study of any potential treatment—no matter how benign it may seem, at first.
In the U.S. medical research database, PubMed, research on EO and Autism is scarce. In the Complementary and Alternative Medicine Databaes, there are a few studies that address very specific questions, which is how you have to search for information if you want to accurately answer your question. For example, “essential oils (or aromatherapy) to improve sleep with children with Autism.” Or “Does lavender essential oil help calm children with autism so they can focus on performing a task?” A high quality study will use a control (or comparison group); will have standardized definitions of the variables being observed; uses standardized measurement tools or criteria (such as a validated questionnaire or measure of heart rate and blood pressure); and aims to manage outside factors that could influence results. For example, if a lavender EO is used in a child’s bath, you would not also want to be playing calming classical music at the same time and then measure how easily a child falls asleep. The presence of the calming music interferes with the observation of the essential oil treatment.
Study Evaluating Essential Oil Effects on Sleep Patterns in Children with Autism
In the past year, researchers at the Ohio State University Wexner Medical Center set out to discover if EO can help children with Autism get to sleep. The ongoing study uses all the “gold standards” for clinical research. The study aims to find out if EO increase relaxation prior to bedtime and improve the quality of sleep for children with ASD (A very specific research question!). Researchers are comparing the safety and effectiveness of two mixtures of 18 essential oils. Mixture A is being tested in the first 3 months. A topical solution will be applied to the back of the neck and feet before school and at 20 minutes before bedtime the mixture will be diffused in the child’s bedroom and continue through the night. For children who are able to, they will wear a watch-style recording device to measure sleep quality and movement during sleep. There will be a one-month break, then the research protocol will be repeated with the EO Mixture B for another 3 months. Dozens of children will be tested over a two-year period. If you’d like to get involved, contact the study director through this link.
The short answer to the question about whether or not EO have benefit for children with Autism is “maybe.” It depends on the child, the oil or oils being used (and the quality of those oils), and it depends upon the reason for use. The more questions we ask, and the more care we take in investigating answers, the more likely we are to find safe, effective natural remedies to complement treatment for children with Autism.
Essential Oils for Autism Treatment: Interview with Dr. Hollway of the Ohio State University Wexner Medical Center. https://ecochildsplay.com/2016/01/25/essentials-oils-for-autism/
Best Essential Oils for Autism and ADHD—The Ultimate Guide. AutismParenting.com
Williams, Tim I. (2006) “Evaluating Effects of Aromatherapy Massage on Sleep in Children with Autism: A Pilot Study.” Evidence-based Complementary and Alternative Medicine, (3)3, 373–377. PMC. Web. 28 Nov. 2017.
National Library of Medicine. PubMed Health. Essential Oils
Levy, S. E., & Hyman, S. L. (2008). “Complementary and Alternative Medicine Treatments for Children with Autism Spectrum Disorders.” Child and Adolescent Psychiatric Clinics of North America, 17(4), 803–ix. http://doi.org/10.1016/j.chc.2008.06.004
Essential Oils Information Guide from Neal’s Yard Remedies
Professional Aromatherapy Associations
National Association for Holistic Aromatherapy.
Find a Naturopathic Doctor
In the yoga community, children with special needs are described differently. All children are recognized as special with some children having additional needs that require unique approaches to interaction, communication, and learning. It’s a “Zen-sational” way of viewing a child who is on the Autism Spectrum, lives with ADHD, or is developing differently due to behavioral, emotional, or sensorimotor challenges. This is exactly the perspective you should look for in anyone who offers to teach yoga to any child, but especially someone with additional needs. Let’s take a look at some of the benefits yoga can bring to children and, more importantly, the preferred qualities and qualifications of a yoga teacher or yoga program for children with additional, special needs.
There are many ways in which yoga can benefit all children and these benefits are particularly helpful to children with additional needs. Benefits can and will vary based on each child’s unique needs, the special challenges they live with, and how long they participate in a yoga program. In general, the benefits of yoga for children include:
A yoga teacher must be able to see the child who is right before them and begin with that child where they are in that moment. What does that mean? Very simply, that the teacher has a class structure but is able to let go of a preconceived plan to move with the rhythm and energy of the children as they are at that time in class. It also means that the teacher has let go of any expectations for where a child should be, what they are supposed to do, or how some book says they need to execute a yoga pose. A teacher who can truly be present for a child right where they are and as they are will be able to help that child gradually achieve a sense of fulfillment and self-efficacy in yoga. It then becomes possible to carry that sense of “I can do it” or “I did it” from the yoga mat and into other areas of the child’s life.
This is a bit similar to the question of sending a child to a regular public school or day care center versus a facility that is specifically designed for their needs. Yes, children with additional needs can participate in a class with more able bodied and typically developing peers. A typical yoga class with young children (age 3-9) moves quickly and can be very high energy. This can feel overwhelming to a child who has low body awareness or whose additional needs limit their ability to imitate movement. Consequently, when a child with additional needs is placed in a typical yoga class, that class will require two teachers: A teacher who leads the class as a whole and a teacher/parent/aide who stays with the child who has additional needs. The second person along side the child ensures that the child receives the attention and care necessary to benefit from the class.
On the other hand, a special-child yoga class may be more appropriate for children who are highly sensitive, who function better in a smaller group, or whose physical limitations require more hands-on help from an experienced teacher. Often, someone who has had in-depth training with children who have additional needs would teach these classes.
At a minimum, the person who teaches yoga for children with special or additional needs has completed a 200 hour Yoga Alliance approved teacher training and has had educational or practical/life experience with differently-abled children. Ideally, you would want the instructor to have obtained CEUs or certification in teaching yoga for children. For instructors who are teaching classes specifically and only for special children, they should have some advanced training or education that qualifies them for such a role. You may sometimes find occupational therapists or physical therapists teaching these classes after they’ve attended relevant yoga training. The most important step you can take before signing up for a class is to ask questions about a teacher’s experience and certification, to observe a class and see the range of children who are being taught, and to trust your own intuition about whether or not a class or a teacher is a good fit for your child.
“Yoga Generates Huge Benefits for Children with Autism.” Posted by YogaInternational.com https://yogainternational.com/article/view/yoga-generates-huge-benefits-for-children-with-autism
ChicagoTribune.com “Yoga offers benefits for people with special needs” posted 14 March 2012. http://www.chicagotribune.com/lifestyles/health/ct-x-yoga-for-special-needs-0314-20120314-story.html
“Say Yes to Yoga for Kids with ADHD” https://www.additudemag.com/yoga-for-kids-with-adhd/
“6 Benefits of Yoga for Kids with Autism” https://www.autismparentingmagazine.com/creating-inner-peace-the-benefits-of-yoga-for-children-with-autism-spectrum-disorder/
“Therapeutic Effects of Yoga for Children: A Systematic Review of the Literature.” Pediatric Physical Therapy: Spring 2008 - Volume 20 - Issue 1 - pp 66-80, doi: 10.1097/PEP.0b013e31815f1208. http://journals.lww.com/pedpt/Abstract/2008/01910/Therapeutic_Effects_of_Yoga_for_Children__A.10.aspx
You often don’t give a second thought to biting into an ice cream sandwich, riding a bicycle, or watching a movie. For children who have difficulty with sensory processing these activities, become insurmountable hurdles that result in what most people see as inexplicable and out of control response from their child, including tantrums, anxiety, excessive clumsiness, carelessness, and academic failure.
The child could very likely be having difficulty integrating information that comes in from their senses, primarily sound, touch, and sight. Commonly known as Sensory Processing Disorder (SPD), the condition affects approximately 1 in 6 children in ways that are significant enough to detrimentally affect daily activities and healthy functioning. For these children, the brain and nervous system encounter a glitch in receiving messages from the senses, interpreting them, and converting them into appropriate motor and behavioral responses. Children can be affected in one sense or across multiple senses. One child may over-respond while another may under-respond to the same sensory stimuli.
There are many theories about the causes of SPD, but no single factor is responsible. While more research is needed, studies to date indicate that a complex interaction of genetics and environment determine how symptoms of SPD develop for any particular child.
An innovative system for addressing SPD is the Integrative Listening System (iLs), a multi-sensory system that integrates music, movement, and language exercises to help improve brain function. The premise behind iLs is that stimulation of movement, balance, vision, and auditory pathways are vital to the ability to pay attention, process information, coordinate movement, learn and respond. The key components of iLs are air and bone conduction, conveyed through headphones, along with visual and motor input.
Bone conduction and air conduction are the two ways we hear sound. If you’ve ever heard your voice on an audio recording and said, “that doesn’t sound like me” it’s because you’re only hearing the air conduction of your voice. When you speak, your voice is projected over both air and bone conduction, which happens over the mastoid bone just behind your ear. That’s also why, when you have your hearing checked, a vibrator is place on that mastoid bone—it is a test of bone conduction responsiveness and it is crucial in the processing of sensory stimuli.
Integrative Listening Systems uses different frequencies and different levels of sound filtration to selectively train parts of a child’s auditory spectrum. This helps improve learning-related abilities such as sound decoding and auditory memory. The muscles of the inner ear are also trained through a process that triggers patterns of relaxation and response. As the muscle patterns become stronger, the child’s ability for focused listening and attention to tasks can improve.
As lower-level processing tasks strengthen, higher-level processing activities are introduced. These higher-level tasks, such as expressive language training and complex cognitive activities influence the neurological pathways that relay and process sensory information, helping to release the “glitch” that had kept the child entangled in a snare of sensorimotor stimuli.
The results of a successful iLs program for a child with sensory processing challenges can include:
Using the iLs program usually begins with intense sessions with a child’s occupational therapist. The program is also easy to use at home and is often recommended to maintain progress.
“Arousal Study Indicates Integrated Listening Systems Is an Effective Behavioral Solution for Children With Sensory Processing Challenges” Jl of Occupational Therapy, Schools & Early Intervention (2015) 8:3.
Understanding Sensory Processing Issues Understood.org
The Science Underlying Integrated Listening Systems IntegratedListening.com
Parents who care for special needs children face unique circumstances when it comes to finding childcare services that are consistent, compassionate, and of high quality. You have more to consider to insure that your child’s needs are addressed and proper communication occurs between you, your child’s medical team, and the childcare provider. You have to research thoroughly and prepare specific types of questions to find the arrangements that best suit your family situation and your child’s medical, developmental, or behavioral special needs.
Whether you are returning to work after being at-home with your child or you have a school-age child who has recently been diagnosed with a special need, a few of the most crucial aspects of childcare you will want to look for include:
Character traits in your care provider, such as compassion, patience, trustworthy and a loving presence are equally as important as their skills and experience.
The decision about providing care at home or bringing your child to a facility outside the home is based on several factors, some of which are:
While all daycare centers must admit children regardless of disability, a special needs daycare center may be able to better service children with complex needs or those who require special resources/equipment or individualized care. A specialized nanny or at-home care provider may be the right choice for children who have complex disabilities and require one-to-one care. Cost and logistics are something that each family has to assess for themselves. No doubt, you want to strive for the best care at the most affordable price for your budget. Whether you choose at home care or a daycare facility, you’ll want to do your homework.
Before you jump on Google to research childcare options, there are important questions you need to answer about your family situation and your child.
Answering these types of self-assessment questions (see Resources below for more) combined with discussion with your child’s therapeutic team will help you do good research and make the best choice for your family and child. This also provides you with good information that you’ll need when you start talking to care providers.
A variety of resources are available online and from national agencies to help you plan the types of questions to ask a care provider, be it an at-home agency /provider service such as Care.com or SeekingSitters.com or a childcare facility near your home. The specific questions you ask will be relevant to your self-assessment and your child’s special needs. Some of the more important topics to inquire about include questions about
A good resource for questions and checklists and the types of information that should be shared with caregivers has been created by the Maryland Family Network for Inclusive Child Care. The Directions resource from the State of Connecticut provides information about how to organize your child’s health information and includes everyday childcare options that you may need to think about for your child.
Once you’ve done your research, checked references, and have narrowed down your options, ask if there is a “trial day” or “trial week” available. Observe your child’s response to the care provided. Does your child respond to the providers and the new experience in ways that are typical for them? Or, is there an unexpected escalation in problem behavior? There will always be a challenge when a special needs child encounters a change in routine; you are looking for evidence that the childcare service can provide an atmosphere within which your child can thrive in response to the level of care that is required of her or his special need.
In addition to these resources, Google “special needs childcare providers in (your town or county)”.
Special Needs Resources Connecticut via ConneCTKids.gov provides listings and a wide variety of information about government and non-profit resources, commercial and national resources. Sub-categories for different needs (i.e., Autism, assistive technology, family support)
CT Department of Public Health has a Child Development Infoline and care coordinator, brochures, respite/emergency funding resources, and materials to help you plan and coordinate care.
Directions is a CT Public Health guide to help you plan and coordinate care for your child or adolescent with special health care needs. In Directions you will find: ways to organize your child’s health information; information about caring for your child’s special needs; resources; and tips from other parents of children with special health care needs.
Parents.com Interactive Childcare Safety Checklist
Respite Care for Children with Special Needs is a resource to help a caregiver take much needed “personal time” while entrusting their special needs family member to the care of a qualified individual. It explains why respite care is important for full-time caregivers, how to access funding, and how to select a respite caregiver. **
**The Talcott Center Blog will feature an article about this topic in the near future.
Most pet owners know, cuddling up to a furry friend can improve one’s sense of well-being. And that’s the primary reason we so frequently see therapy animals in schools, hospitals, libraries and nursing homes. Children with a range of disabilities, medical conditions, and developmental or behavioral needs have benefitted from both animal interaction and companionship. Would a therapy pet or animal assisted therapy benefit your special needs child?
To answer that question it’s important to understand these key factors before reaching out to a therapy dog association about a pet for your child:
First, learn about how these animals are trained. Second, communicate with your health practitioner to assess your child’s level of readiness for either an in-home therapeutic animal partner, or a pet-assisted therapy program, in which a pet is present during therapeutic sessions but is not the child’s at-home companion animal. Finally, call and visit a reputable companion animal or assisted therapy animal training facility to identify the appropriate companion for your child. For the first and last items, we provide some general information in this article, and you can learn more at the websites listed below in the Resources.
Not just any animal can become a therapy companion. The general certification process for dogs, for example, is long and rigorous—including obedience training, good citizenship training, and an animal behavior evaluation that assess how the dog handles unpredictable circumstances and settings. There is also a process for assessing an animals’ fit for a particular client and their special need—be it emotional, developmental, physical, or a medical need. Additional training may be required for an animal to become certified to work with different situations or health conditions. These requirements may vary by organization, which is why it is important to work with your child’s health practitioners and the certifying organization in order to find the best fit.
Be it a dog, rabbit, or other furry four-legged friend, a companion animal for a special needs child is as much a responsibility for the child (and your family) as it is for the animal who will provide unconditional support, protection, and trust. The family, and ultimately the child to the extent of her or his abilities, will be responsible for the care of the animal.
If your child is able to accept that responsibility consistently, and meets the qualifications of the therapy animal agency, then he or she may be a candidate for an at-home companion animal. The benefits of a live-in companion animal for a special needs child include:
When thinking about companion animals, don’t assume a dog is your only option. Cats, rabbit, and even fish can provide many of the same benefits. They also may be a great first-step toward a companion animal that requires more responsibility.
If a companion animal at-home is not a suitable match for your child, animal assisted therapy could be an option. Studies have consistently shown that exposure to animals in therapy improves communications, reduces anxiety, lowers blood pressure and heart rate, and can bolster self-esteem and communication. (And, many of the above listed benefits also apply). Animal therapies can augment typical occupation, physical or even speech therapy. Animal assisted therapy not only requires a specially trained service animal, but also a uniquely trained animal handler or therapist. You will want to inquire about the training of both the animal and it’s handler when considering animal assisted therapeutic programs.
As you are starting the discussion about animal therapy options with your family and your health provider, and researching options in your local area, you can also take these next steps with your child:
Learn More About Therapy Dog Training at Therapy Dog International
Animal Assisted Therapy by Tails-U-Win in Connecticut
Therapy Dog Training by Tails of Joy in Connecticut
Soul Friends Animal Assisted Therapy Programs of CT includes dogs, horses, rabbits, and other animals.
Dalien, S. “Animal Therapy for children with Special Needs.” At SpecialEdResouce.com http://specialedresource.com/resource-center/animal-therapy-children-special-needs
Benefits of Pet Ownership for Children with Special Needs. BraiBalanceCenters.com
Animal Assisted therapy for Special Needs by PursuitofResearch.org
Children with special needs, particularly older children and children whose special need is “invisible” to others, may have more of a struggle with the transition back to school. Children entering intermediate or middle school (grades 4-7) are likely to be moving into a new school building, merging with students from other schools in the district, and dealing with the social and emotional development challenges that come with the pre-teen years. This—in addition to living with attention deficit, Autism spectrum, or other learning disorders that are not visible to others the way physical disabilities are—can create a perfect storm of developmental chaos at the start of a new school year.
Whether you child is transitioning to a new school, a new grade level or both, there are steps you can take to ease the back-to-school burden for your child.
1. Plan Ahead with P.E.P. There are three main areas to address in planning your special child for the transition:
People: Before school starts, make arrangements for your child to meet with the people she or he will spend most of the day with: teachers, guidance staff, administrative staff, principal, school nurse and if applicable, the bus driver. Help your child understand who is the “go to person” for different concerns or questions that may arise.
Environment: The guidance or front office staff should be able to arrange a tour of the grounds—buildings, classrooms, recess/gym area, parking areas, restrooms, and the routes leading to and from the school building. Make note of areas that are off limits to students and explain why. If construction is taking place around the school, let your child know what to expect.
Personal Needs: Meet with instructors before school starts or during the first week to go over your child’s triggers/stressors, IEP, behavior plans and communication strategy between home and school.
2. Share Data. If anything has changed since the end of the previous school year, update your records and share this information with the school nurse, counselor or educators who will work most closely with your child. For example, coping strategies that may have worked during fifth grade but have changed in the months leading up to grade six. If there is any new testing data for your child, bring that to the school rather than relying on your healthcare team to fax it over.
3. Establish Goals. You may have long-term goals for your child (e.g., graduating middle school), but even typically developing teens don’t take the long-term view of what they need to accomplish and why. Break large goals into small, manageable objectives and celebrate their achievements along the way. Help your child connect objectives to the bigger goal by reminding them of how they are related. This can be done for each subject/class or for sports they enjoy. For example: Math homework may seem like busy work and pointless to your student. Help them understand how multiplying larger numbers will help them solve real problems like how many jerseys to order for 17 players who each need two jerseys in two different colors.
4. Share Personal Experience. Grown-ups forget what it was like to be an adolescent. Sure times may have been different, and we tend to see our past through rose-colored glasses. If you think about it long enough, you’ll recall experiences where you struggled, failed, overcame a challenge, etc. Even if you grew-up without the challenge of learning or other developmental challenge, you can find experiences to relate to you child to convey that you empathize and have, even walked in similar shoes as they are in now.
5. Make a Transition Book. During your meetings with teachers, take pictures of the rooms, hallways, and exterior of the school grounds. Work with your child to create a book with these pictures, label each area and what typically takes place there. Use a school map to reinforce special event procedures such as assembly, dances, and fire drills.
6. Review the Routine. Once your child has a schedule, review the routine for each day the night before. This is especially helpful if your child has a rotating A-B schedule, and changes classrooms/teachers during the day. Use the school map to label the location of classrooms, teacher’s name, etc.
7. Arrange Peer Socials. Before school starts and during the school year, arrange social outings so that your child can connect with friends they will be going to school with as well as friends from their old school. These can be simple get-togethers at the mall, movie night, meeting for an ice cream, or having a pizza at your home.
8. Go Digital; but Keep Hard Copies. Keep up to date print copies of IEPs, emergency procedures and other important documents on hand for times when you can’t access digital data. This also is a good idea for your child’s homework.
9. Expect Mistakes. Every child is going to forget homework, bring home a poor test grade, and struggle with peer relationships. Every situation has to be examined individually and determined if it’s an isolated event versus part of a bigger pattern. Yelling rarely works with any teenager. Talk through what did or did not happen that resulted in the situation. For example, did your child not study for the test? Did they express something in an inappropriate way? Were they caught in the crossfire with other kids? ~ Schools and teachers are going to make mistakes as well. Keep calm, be diplomatic, gather the facts, and know what you expect to happen before you show up at school with demands.
10. Reward Success. When your child (or their teacher or other school personnel) does something well, let your child know how you feel about their achievement—even if its as simple as bringing up a grade by few points or winning an essay contest. Point out specific things about their achievement that really stand out to you. Likewise, when the school is doing things right, they need to hear from you.
How to Prepare Your Child With Special Needs for the Back-to-School Transition (empoweringparents.com)
Tips for Helping kids with Special Needs Change Schools (childmind.org)
School Transitions for the Elementary Grades (autism-societ.org)
We hope it never happens to us, but the reality we all live with is the threat of a natural disaster or terrorist attack that could devastate the place we call home. For families with special needs children, emergency preparedness becomes even more critical because there is so much more that you have to mobilize to ensure the safety and care of your child.
A variety of resources are available to help you prepare in the event of a disaster. But there isn’t one plan for every family because of the great range in resources required for children with different types of special needs. We’ve outlined key steps you should focus on in preparing for your child’s special needs. You’ll also find more in depth resources listed at the end of this article.
Think about what kinds of supplies, medicines and assistance your family needs on an ordinary day. In the event of a disaster, you’ll need those resources ready to go and in place for at least 3 days on your own before rescue workers may be able to reach you. A few key questions to think about:
Part of your assessment of family needs is to learn as much as you can about local disaster response services. Some states and municipalities have a registration system for individuals with disabilities and intricate medical needs. Some local organizations you can call are:
In addition to survival basics such as food, water, emergency lighting and radio, first aid, and tools – you will likely need:
A personal support network goes beyond your immediate family and neighbors. In a disaster situation, you may not be able to reach them. It includes local associations specific to your family member’s special needs, medical providers, and personal care attendants. Cast a wide net so that in an emergency situation you can reach someone in your network. Even more importantly, these people will know how to reach you and look for you based on your evacuation and emergency care plan.
Review your plans at least once a year; twice if you live an area more prone to natural disasters or other type of -risk threat. Also, remember to:
Disaster can strike at anytime. None of us are out of range of threat and we all need to be prepared.
Emergency Preparedness for Children with Special Needs. Center for Children with Special Needs: http://cshcn.org/resources-contacts/emergency-preparedness-for-children-with-special-needs/
Resources for Emergency Preparedness and How to Organize Your Child’s Information
CT Department of Public Health: Resources for preparing young children and those with disabilities: http://cshcn.org/planning-record-keeping/
Connecticut Resource Guide for Including People with Disabilities in Disaster Preparedness Planning: http://www.ct.gov/ctcdd/lib/ctcdd/guide_final.pdf
Emergency Preparedness for Children with Special Needs Emergency Preparedness for Children with Special Needs (2013). https://blogs.cdc.gov/publichealthmatters/2013/07/emergency-preparedness-for-families-with-special-needs/
Red Cross: Disaster Safety for People with Disabilities: http://www.redcross.org/get-help/how-to-prepare-for-emergencies/disaster-safety-for-people-with-disabilities
Checklist for Children with Special Nutrition Needs: http://depts.washington.edu/cshcnnut/download/resources/disasterchecklist.pdf
FamilyVoices.org. Disasters and Emergencies: Keeping Children and Youth Safe: http://www.familyvoices.org/work/caring?id=0004
The day a family first learns about their child being diagnosed with Autism or ADHD can be one of mixed emotions, ranging from anxiety to sadness over the implications this news has for the child and the family. Amid the overwhelm, you may even experience relief in finally “knowing” what’s happening with your child’s social and emotional development. By adopting a mindful perspective and following a few essential tips, you can help empower everyone in your family to learn how to manage and live with a special needs behavioral diagnosis.
Special needs children are special not just because their behavior or development makes them different. They are special because of what they are capable of teaching us about ourselves, about how we view the world, and ultimately about how we behave.
When a child is delayed in development of fine motor skills, learning to print, let alone write in script, can be a tiresome and frustrating task. Working through the frustration to help a child learn to print, and then write their name to the best of their ability has many positive outcomes:
If a child has a health condition that affects their nerves and muscles, or if there is a learning disorder, it’s easy to understand why it is difficult with learning to write. Handwriting requires communication between the brain and the coordinated effort of the eyes and the muscles of the hand, fingers, wrist, and forearm. The child must be able to develop the strength and dexterity necessary for holding a pen or pencil while keeping the hand steady even as it moves across the page and makes micro-movements to form letters. Add to all of that while sitting still at a desk or table.
For special needs children, including those who have dyslexia, autism, or ADHD, learning to write requires an enormous amount of energy, focus, and practice. It’s good to keep in mind that even children who do not have physical or learning disorders have a difficult time with handwriting—it takes time, patience, and practice for them as well. In fact, many schools use the Handwriting without Tears® curriculum for all children.
If your child is enrolled in a skills class or occupational therapy program that teaches handwriting, you will want to follow the therapist’s instructions for handwriting practice at home. If you are working with your child independently, keep the following things in mind:
When a child writes their own name for the very first time, to them it feels like their name is up in lights! Celebrate and reward your child in meaningful ways. Recognize that exercise and practice can help improve these skills but struggle is par for the course. Your child may never write perfectly, but that’s not the goal. Rather, the goal is to be able to communicate as clearly as possible in their own unique handwriting, and establish motor patterns that will be useful in other forms of communication.
The ABCs of Handwriting for Children with Special Needs. FriendshipCircle.org
Improving Handwriting in Children with Autism especialneeds.com
When it Comes to Handwriting, Practice Doesn’t Always Make Perfect. Additudemag.com
Handwriting and Letter Formation (Tips for a multisensory approach for all children, some tips may apply to children with special needs.)
Hand Strength and Dexterity Tools & Toys eSpecialNeeds store
Do you get overwhelmed when choosing a vacation destination that is suitable for your special needs child and exciting for other family members?
You’ll be glad to know there are travel planning services and vacation destinations that are gaining recognition for specialized services for families with special needs, including ASD and ADHD. For example, cruise lines, and destinations can acquire an Autism Certificate (e.g., Beaches resorts). Another option is for a service, destination or program to receive recognition or designation from one of the national organizations or research centers that specialize in ASD or other special needs, including:
To receive the designation as Autism-friendly, the resort or service has to meet certain standards. This usually includes specialized training for employees who assist guests with travel before, during, and after their trip.
While there isn’t a travel industry certification specifically for agents, many who specialize in travel services for special needs do so because they have experience with a special needs child or adult in their family. Some agents may be eligible to acquire an Autism Certificate from a credentialing organization. Others have established a strong network with practitioners, national/regional/state organizations, and support groups.
To help you sort through the choices and planning that goes into traveling with your special needs child and their siblings, we brought FAQs to travel specialist Jennifer Trinidad of Majestic Palms Travel, an agent of Modern Travel Professionals. Jennifer is the parent of a sensory hypersensitive child. She and her husband Christian specialize in travel services around the world for families who have children with a wide range of needs, from food allergies to developmental and sensory conditions. They have helped families navigate travel to Disney, Europe, the Far East, Canada, the Caribbean, Hawaii and mainland U.S., as well as cruises.
Take the time to do an initial phone call with the agent(s). Five basic questions to ask are:
Keep in mind that the right travel planner for your family may or may not be in your back yard. Many travel planners will work with clients regardless of where they live.
When you speak to an agent, be honest and up front about your concerns, interests, and needs. If the thought of planning the trip, and the “list of all of the possible things that could go wrong” that your brain decides to play on loop makes you want to run for the hills and hide, say so. Every family comes from a different place, mindset and experience level. If your agent knows where you’re really coming from, they’ll be better able to help guide you through the quoting and booking process, and the planning process to follow.
The goal of any questions an agent will ask should be to generate a conversation so that your needs and what is truly important to you and your family are brought to the surface during the initial quoting. A more directed initial quoting process benefits everyone. For us, we have a set of baseline questions for our clients during the initial conversations. These help us know where to dig further to make sure we look at the destinations that may best suit the family.
Some of the questions we may ask:
Families traveling with special needs have a variety of options, and those options will depend on your specific situation, interests, and comfort level:
For those looking for an all-inclusive option, our favorite for families with special needs of all types are the Beaches resorts in Turks & Caicos and Jamaica. Custom kids programming, experienced staff, a culinary concierge program to support dietary needs and an all-inclusive environment gives everyone a well-deserved break (that means you too, parents and caregivers).
If you prefer to stay stateside, Tradewinds in St. Petersburg, FL has received an Autism Friendly Certification. Also consider:
Rental homes are available throughout these areas, in addition to hotels. In Southern California, of course, are the three resorts located on-site at Disneyland in Anaheim.
Of course, there is Walt Disney World in Orlando, which we absolutely love for the many ways the parks accommodate for special needs. We also like Universal Orlando Resort. Universal Orlando is consolidated in size compared to the Disney parks. You can take an accessible walkway from any of the five (soon to be six) resorts to the entrance of Universal CityWalk under 20 minutes. Depending on your on-property resort choice, you’ll also be able to take an accessible water taxi or bus. With advance notice, special dining considerations can be met at many of the full-service restaurants. Universal Orlando’s private and small-group tour guides provide a add-on VIP experiences that may provide the personalized attention some families require. Also, express passes help families avoid congested and long waiting lines. Many rides at Universal Orlando theme parks also have a Family Waiting Room, providing a safe and sheltered place for those not riding to await those that are.
Many of the U.S. National Parks have accessible trails and activities, as do some states’ parks (check with your specific state). Depending on your specific situation, there are also cabin rentals in many parks across the country, such as Allegheny State Park on the NY/PA border, as well as RV parking/camping areas. Amtrak vacations are also a nice way to enjoy both the journey and the destination.
For more adventurous or globetrotting families, we recommend Adventures by Disney tours. With over 40 land and river cruise itineraries around the world (including the U.S and Canada), Adventures by Disney is different from other “group tour” companies. Aside from many immersive and unique “backstage” experiences included in your package (such as private, after-hours access to the Sistine Chapel in Rome), each tour is led by two Adventure Guides who specialize in the locations and can work with their guests on activity levels and other needs. While not every itinerary can be customized to every need, Adventures by Disney will have those discussions with travel agents and guests during both the booking process and planning process (so you don’t deposit a trip your family won’t be able to do).
Cruise lines have also take up the mantle of accessible accommodations. Royal Caribbean Cruise Line, Celebrity Cruise Line, Norwegian Cruise Line, Disney Cruise Line and Carnival Cruise Line have been recognized for their support of children and adults with Autism and other disabilities; Royal Caribbean and Celebrity have received formal Autism Friendly Cruise Line certification. All can accommodate several dietary needs. If accessibility is needed, work with your travel agent to assist you with securing an accessible room and onboard accessibility devices from approved partner vendors.
Destination choices generally come down two core considerations:
Keep in mind that the right travel planner for your family may or may not be at the agency in your hometown or the one owned by your cousin Sally. Search online and research agents and their services as much as you can. Many travel planners will work with clients regardless of where they live. Finally, allow your travel planner to help you think through where it makes the most sense to allocate your hard-earned travel investment in alignment with your family’s needs.
Special Needs Vacation Spots (list provided by TheVacationCritic.com)
Allergy-Friendly Travel Resources (provided by Majestic Palm Travel Agency)
Cruise Planners: Easy Access Travel; “Autism on the High Seas”
World Travel Excursions – Agencies specializing in family and group travel around the globe; list provided by FriendshipCircle.org
CARD Center for Autism Disorders find locations and then visit the. If you don’t see resort/vacation designations for a state, call the center for assistance.