Friday, 04 August 2017 05:19

When Disaster Strikes: Resources for Emergency Readiness for Families with Special Needs

We hope it never happens to us, but the reality we all live with is the threat of a natural disaster or terrorist attack that could devastate the place we call home. For families with special needs children, emergency preparedness becomes even more critical because there is so much more that you have to mobilize to ensure the safety and care of your child.

A variety of resources are available to help you prepare in the event of a disaster. But there isn’t one plan for every family because of the great range in resources required for children with different types of special needs. We’ve outlined key steps you should focus on in preparing for your child’s special needs. You’ll also find more in depth resources listed at the end of this article.

Assess Your Family Situation

Think about what kinds of supplies, medicines and assistance your family needs on an ordinary day. In the event of a disaster, you’ll need those resources ready to go and in place for at least 3 days on your own before rescue workers may be able to reach you. A few key questions to think about: 

  • Depending on the nature of the disaster and personal needs, will you shelter-in-place at your home; go to a public shelter; or somewhere else? Plan for all possibilities. Consult with your child’s care providers to be sure your plan meets their most urgent needs.
  • How will family members communicate, if separated, and local phone service is unavailable? 
  • Have you pre-registered with 2-1-1 if help will be needed to evacuate? 
  • Are there medical supplies that need refrigeration? 
  • Is there equipment that requires electricity? Have I notified the utility company? 
  • Do you need a back-up generator? 
  • What supplies for service animals or family pets are needed? By law, service animals must be allowed in public shelters.
  • Have you discussed emergency situations with your child’s school? Ask for the emergency plan at your child’s school or child care facility. Plan with them how your child will get the care they need in an emergency.

Gather Information about Disaster Response Services

Part of your assessment of family needs is to learn as much as you can about local disaster response services. Some states and municipalities have a registration system for individuals with disabilities and intricate medical needs. Some local organizations you can call are:

  • American Red Cross Chapter
  • Local Emergency Response Management Office
  • Local fire or police registration program
  • Your medical provider or preferred hospital or insurance company
  • Smart 911 is a free service that allows families to create a safety profile for their household that includes any information they want 9-1-1 to have in the event of an emergency.

Make an Emergency Supply Kit & Create an Action Plan

In addition to survival basics  such as food, water, emergency lighting and radio, first aid, and tools – you will likely need:

  • An Emergency Information Form with a list of your child’s current doctors, pharmacy and phone numbers 
  • Obtain a medical alert and/or identification bracelet for your child. Some organizations sell decals that can be put on the home or car to alert responders that there is a child with special needs
  • A list and 2 week supply of all current prescription and non-prescription medicines, or as much as possible 
  • 2 weeks of medical supplies such oxygen, syringes, catheters, formula and other nutritional products 
  • Pack smaller “to go” kits for use in an evacuation. Store them in multiple places such as your car, at work and at school.
  • Store important documents like medical records, health insurance cards, prescriptions and personal identification on a CD, flash drive, or phone app. Keep paper copies in a waterproof bag. 
  • Extra batteries and/or chargers for hearing aids, wheelchairs, and other essentials 
  • Personal hygiene items 
  • Items to calm and entertain your child 
  • Have you shared a copy of your plan with family, close friends and medical provider?

Create a Support Network for your Family

A personal support network goes beyond your immediate family and neighbors. In a disaster situation, you may not be able to reach them. It includes local associations specific to your family member’s special needs, medical providers, and personal care attendants. Cast a wide net so that in an emergency situation you can reach someone in your network. Even more importantly, these people will know how to reach you and look for you based on your evacuation and emergency care plan.

  • Ask your pharmacist how long the medicine can last and storage needs of the medicines.
  • Keep a two-week supply of medical care items such as needles, nasal cannulas, bandages, etc.
  • Keep a cooler and chemical ice packs for storing medications that must be kept cold.
  • Keep prescription information in your wallet, survival kit and car that includes the name, location and phone number of an out of town pharmacy.

Review your plans at least once a year; twice if you live an area more prone to natural disasters or other type of -risk threat. Also, remember to:

  • Update supplies yearly 
  • Replace water every six months 
  • Update emergency contact and medical forms as needed

Disaster can strike at anytime. None of us are out of range of threat and we all need to be prepared.

Resources

Emergency Preparedness for Children with Special Needs. Center for Children with Special Needs:  http://cshcn.org/resources-contacts/emergency-preparedness-for-children-with-special-needs/ 

Resources for Emergency Preparedness and How to Organize Your Child’s Information 

http://cshcn.org/planning-record-keeping/

CT Department of Public Health: Resources for preparing young children and those with disabilities:  http://cshcn.org/planning-record-keeping/ 

Connecticut Resource Guide for Including People with Disabilities in Disaster Preparedness Planning:  http://www.ct.gov/ctcdd/lib/ctcdd/guide_final.pdf 

Emergency Preparedness for Children with Special Needs Emergency Preparedness for Children with Special Needs (2013). https://blogs.cdc.gov/publichealthmatters/2013/07/emergency-preparedness-for-families-with-special-needs/ 

Red Cross: Disaster Safety for People with Disabilities: http://www.redcross.org/get-help/how-to-prepare-for-emergencies/disaster-safety-for-people-with-disabilities 

Checklist for Children with Special Nutrition Needs: http://depts.washington.edu/cshcnnut/download/resources/disasterchecklist.pdf 

FamilyVoices.org. Disasters and Emergencies: Keeping Children and Youth Safe:  http://www.familyvoices.org/work/caring?id=0004 

Published in Helpful Tips

What's New at The Center?

New Social Skills Programs!
Learn More >

We are now in-network with Harvard Pilgrim. Learn More >

The Talcott Tale

Sign-Up for our FREE newsletter and we'll keep you up to date with news & events!
Please wait