Wednesday, 31 May 2017 15:06

Vacation Planning Services for Families with ASD and Other Special Needs

Do you get overwhelmed when choosing a vacation destination that is suitable for your special needs child and exciting for other family members?

You’ll be glad to know there are travel planning services and vacation destinations that are gaining  recognition for specialized services for families with special needs, including ASD and ADHD. For example, cruise lines, and destinations can acquire an Autism Certificate (e.g., Beaches resorts). Another option is for a service, destination or program to receive recognition or designation from one of the national organizations or research centers that specialize in ASD or other special needs, including:

  • SEED (Social Enrichment and Educational Development) Autism Center – for Beaches Resorts 
  • CARD (Center for Autism and Related Disabilities) – centers in different states, for resorts 
  • Autism on the Seas – for cruises
  • Local chapters of national “cause” organizations relevant to your family’s health

To receive the designation as Autism-friendly, the resort or service has to meet certain standards. This usually includes specialized training for employees who assist guests with travel before, during, and after their trip.

While there isn’t a travel industry certification specifically for agents, many who specialize in travel services for special needs do so because they have experience with a special needs child or adult in their family. Some agents may be eligible to acquire an Autism Certificate from a credentialing organization. Others have established a strong network with practitioners, national/regional/state organizations, and support groups.

Tips for Travel Resources and Planning for Special Needs Families

To help you sort through the choices and planning that goes into traveling with your special needs child and their siblings, we brought FAQs to travel specialist Jennifer Trinidad of Majestic Palms Travel, an agent of Modern Travel Professionals. Jennifer is the parent of a sensory hypersensitive child. She and her husband Christian specialize in travel services around the world for families who have children with a wide range of needs, from food allergies to developmental and sensory conditions. They have helped families navigate travel to Disney, Europe, the Far East, Canada, the Caribbean, Hawaii and mainland U.S., as well as cruises.

What are good questions to ask a potential travel agent, to help determine if the agent is a best fit for their family’s needs? 

Take the time to do an initial phone call with the agent(s).  Five basic questions to ask are:

  • How long have they been booking travel?
  • Do they have experience in working with families with differing health needs, as well as your specific concerns?
  • What are their specialty destinations?  
  • Can they provide relevant references?
  • Do they work alone, or are they part of a broader agency? An agent with a support and resource network is incredibly valuable to you as a client.

Keep in mind that the right travel planner for your family may or may not be in your back yard. Many travel planners will work with clients regardless of where they live.

When you speak to an agent, be honest and up front about your concerns, interests, and needs. If the thought of planning the trip, and the “list of all of the possible things that could go wrong” that your brain decides to play on loop makes you want to run for the hills and hide, say so. Every family comes from a different place, mindset and experience level. If your agent knows where you’re really coming from, they’ll be better able to help guide you through the quoting and booking process, and the planning process to follow.  

What types questions should travelers expect the travel planner to ask of them, to make sure they are going to receive the best possible service from that agent?

The goal of any questions an agent will ask should be to generate a conversation so that your needs and what is truly important to you and your family are brought to the surface during the initial quoting. A more directed initial quoting process benefits everyone. For us, we have a set of baseline questions for our clients during the initial conversations. These help us know where to dig further to make sure we look at the destinations that may best suit the family.  

Some of the questions we may ask:

  • What is most important to you and your family in this trip?
  • Are there any destinations or resorts that you definitely are not interested in?
  • Are there any dietary needs within your travel party?  
  • Are there special health needs or conditions within your travel party? (additional questions specific to health needs will follow)
  • What is your family’s activity level?  Do you like to be active and on the go the entire time?  Do you like to sit by the pool or beach all day?  A combination of both?

Which destinations are exceptional in the service and amenities they provide for special needs families?

Families traveling with special needs have a variety of options, and those options will depend on your specific situation, interests, and comfort level:  

For those looking for an all-inclusive option, our favorite for families with special needs of all types are the Beaches resorts in Turks & Caicos and Jamaica. Custom kids programming, experienced staff, a culinary concierge program to support dietary needs and an all-inclusive environment gives everyone a well-deserved break (that means you too, parents and caregivers). 

If you prefer to stay stateside, Tradewinds in St. Petersburg, FL has received an Autism Friendly Certification. Also consider:

  • Myrtle Beach, SC
  • Ocean City, MD
  • Galveston, TX
  • Hampton Beach, NH 
  • Maine coast (York to Bar Harbor, or Acadia National Park) 
  • Southern California area from Anaheim to San Diego.  

Rental homes are available throughout these areas, in addition to hotels.  In Southern California, of course, are the three resorts located on-site at Disneyland in Anaheim.

Of course, there is Walt Disney World in Orlando, which we absolutely love for the many ways the parks accommodate for special needs. We also like Universal Orlando Resort. Universal Orlando is consolidated in size compared to the Disney parks. You can take an accessible walkway from any of the five (soon to be six) resorts to the entrance of Universal CityWalk under 20 minutes. Depending on your on-property resort choice, you’ll also be able to take an accessible water taxi or bus. With advance notice, special dining considerations can be met at many of the full-service restaurants. Universal Orlando’s private and small-group tour guides provide a add-on VIP experiences that may provide the personalized attention some families require. Also, express passes help families avoid congested and long waiting lines. Many rides at Universal Orlando theme parks also have a Family Waiting Room, providing a safe and sheltered place for those not riding to await those that are.  

Many of the U.S. National Parks have accessible trails and activities, as do some states’ parks (check with your specific state).  Depending on your specific situation, there are also cabin rentals in many parks across the country, such as Allegheny State Park on the NY/PA border, as well as RV parking/camping areas. Amtrak vacations are also a nice way to enjoy both the journey and the destination.

For more adventurous or globetrotting families, we recommend Adventures by Disney tours.  With over 40 land and river cruise itineraries around the world (including the U.S and Canada), Adventures by Disney is different from other “group tour” companies.  Aside from many immersive and unique “backstage” experiences included in your package (such as private, after-hours access to the Sistine Chapel in Rome), each tour is led by two Adventure Guides who specialize in the locations and can work with their guests on activity levels and other needs.  While not every itinerary can be customized to every need, Adventures by Disney will have those discussions with travel agents and guests during both the booking process and planning process (so you don’t deposit a trip your family won’t be able to do).

Cruise lines have also take up the mantle of accessible accommodations.  Royal Caribbean Cruise Line, Celebrity Cruise Line, Norwegian Cruise Line, Disney Cruise Line and Carnival Cruise Line have been recognized for their support of children and adults with Autism and other disabilities; Royal Caribbean and Celebrity have received formal Autism Friendly Cruise Line certification. All can accommodate several dietary needs. If accessibility is needed, work with your travel agent to assist you with securing an accessible room and onboard accessibility devices from approved partner vendors. 

Final tips to help families make a choice for travel destination? 

Destination choices generally come down two core considerations: 

  • Your family’s specific situation. Beaches Resorts are phenomenal, but if a plane ride, sun, sand, and ocean are not an environment compatible with your family’s situation, don’t book it. It sounds like common sense, but there are families out there who have booked something not in line with their needs hoping it will all work out, only to find themselves very unhappy. Kids can surprise you and enjoy something you never imagined they would. Make trip planning a family affair—include everyone in the planning process before and after you select a travel planner.
  • Value. I say “value” rather than “budget,” because while there are sometimes amazing deals and discounts, “you get what you pay for” rings true more often than not in the travel industry. A good example of this could be your resort room category. If you need a room in a quieter area of a resort rather than in a more active location, it could be a more expensive room than you expected. It may or may not be worth the expense, but make sure to consider all aspects. 

Keep in mind that the right travel planner for your family may or may not be at the agency in your hometown or the one owned by your cousin Sally. Search online and research agents and their services as much as you can. Many travel planners will work with clients regardless of where they live. Finally, allow your travel planner to help you think through where it makes the most sense to allocate your hard-earned travel investment in alignment with your family’s needs. 

Resources

Special Needs Vacation Spots (list provided by TheVacationCritic.com)

Allergy-Friendly Travel Resources (provided by Majestic Palm Travel Agency)

Cruise Planners: Easy Access Travel; “Autism on the High Seas”

ASD Vacations and Special Needs Travel

World Travel Excursions – Agencies specializing in family and group travel around the globe; list provided by FriendshipCircle.org

CARD Center for Autism Disorders find locations and then visit the. If you don’t see resort/vacation designations for a state, call the center for assistance.

SEED (Social Enrichment and Educational Development) Autism Center 

Published in Helpful Tips
Saturday, 06 May 2017 11:53

Diet and ADHD

The ADHD – Diet Connection

Diet and nutrition can play a crucial role in helping manage symptoms of ADHD. Recently, a lot of attention is being given to the amount of processed foods in the diet because these foods often contain additives and preservatives that are not natural to the food supply, and surely not natural to our bodies. 

Some experts recommend people with ADHD avoid these substances:

  • Food Dyes/Artificial Food Colors (AFCs)
  • Food additives such as aspartame, MSG (monosodium glutamate), and nitrites.
  • BHA and BHT, food preservatives that affect food flavor, color, and odor and can reduce nutrient quality. Both have caused cancer in lab mice.

AFCs are widely used by manufacturers across the globe to make food more colorful and enticing. Food dyes are most commonly found in foods marketed for children, but even adults are attracted to brightly colored foods. The amount of dyes used in foods has increased 500 % since the 1950s, according to the Center for Science in the Public Interest (CSPI).

These artificial molecules can bond to food or body protein, which means they can “hide in the body” and disrupt the immune system. This can have significant consequences that affect gastrointestinal function, auto-immunity and even brain and behavior. For some children, ADHD can be triggered and worsened by these synthetic colors, flavors and preservatives. 

What is an Elimination Diet?

An elimination diet simply means certain foods and/or food additives are removed from a person’s diet in order to see if symptoms improve. Things may get mildly better, improve drastically or not at all, depending on the person. Dietary change can be tricky because what and when we eat are intricately tied to physical cues, social setting, mood, and the kind of food that is available and affordable. Elimination diets have been around since the 1970’s, pioneered by Benjamin Feingold, M.D. who studied the effect of food chemicals and the role of nutrition in addressing learning and behavior disorders in children.

Over the decades, many studies in Europe and the U.S. have tested Feingold’s approach and other types of elimination diets. While traditional research finds little support for radical restriction diets, evidence does indicate elimination diets have value and can bring about a change in ADHD symptoms in some children. In fact, the American Academy of Pediatrics now agrees that eliminating preservatives and food colorings from the diet is a reasonable option for children with ADHD. 

In addition to eliminating AFCs, BHA, and BHT from the diet, some children may still require other support. This can include educational adjustments, behavior modification, life skills training, stress management, psychotherapy, nutritional counseling, and prescription medication. Like any medical or behavioral intervention, treatment benefits will vary based on a many factors such as when a child is diagnosed, the type of ADHD symptoms present, and co-occurrence of other medical conditions.

Elimination Diets are Easier than You May Think

Parents often worry that following an elimination diet or other special diet will be expensive and/or difficult—that children will dislike the changes required. But that’s usually not the case. A quick search online brings up a variety of ADHD-diet friendly recipes and shopping tips to help families make it easy to incorporate the changes into their meal planning and still enjoy a variety of delicious foods. If the whole family gets onboard with the diet, the child feels supported and the health of the whole family can improve, too.

  • Don’t make a big deal about the change
  • Make small changes, first, where your child may be least likely to notice (e.g., baking homemade cookies – you control the ingredients – instead of buying boxed)
  • Keep a variety of whole, fresh foods available
  • Reduce your visits to fast food restaurants
  • If you’re child is old enough, involve them in grocery shopping and making wise choices
  • Involve your child in food prep and cooking—make it fun!

Just remember, dietary change and behavior is a complex area of study, and while research has not established a direct cause-and-effect, it may be worthwhile to talk with your child’s doctor or a nutritionist about the connection between what they’re eating and their behavior. 

What is ADHD?

Attention-Deficit Hyperactivity Disorder (ADHD) is a multi-faceted condition that can be triggered by varying environmental, behavioral, and biological factors. A child with ADHD shows an inability to focus and/or impulsivity that is not developmentally typical for her or his age. Symptoms of ADHD fall on a spectrum from predominantly inattentive on one end to predominantly hyperactive at the other end. To be diagnosed with ADHD, a child must have a cluster of symptoms present for 6 or more months that is significantly different from other kids the same age. The symptoms must affect the child’s ability to thrive in at least two environments—usually, home and school.

Resources

“Seeing Red: Time for Action on Food Dyes” (Jan 2016) Center for Science in the Public Interest https://cspinet.org/reports/seeing-red-report.pdf

“FDA Probes Link Between Food Dye, Kids’ Behavior: NPR” by April Fulton (2011) http://www.npr.org/2011/03/30/134962888/fda-probes-link-between-food-dyes-kids-behavior 

Nigg, Joel T., & Holton, K. “Restriction and Elimination Diets in ADHD Treatment.” Child and adolescent psychiatric clinics of North America 23.4 (2014), p. 937–953. PMC. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4322780/ 

Diet & Attention Deficit Hyperactivity Disorder” Harvard Health Newsletter. http://www.health.harvard.edu/newsletter_article/Diet-and-attention-deficit-hyperactivity-disorder 

“Should  You be Worried about Food Dyes?” by Anna Medaris Miller (March 2016) US News and World Reports http://health.usnews.com/wellness/articles/2016-03-17/should-you-be-worried-about-food-dyes 

Diet & ADHD Research Studies. http://feingold.org/resources/studies/adhd/ 

Lyon, M. & Murray, T., “ADHD.”as cited in Pizzorno, J. E. & Murray, M.T. Textbook of Natural Medicine: 4th Ed. (2013) Chapter 150, p. 1252-1259. 

Verlaet AAJ, Noriega DB, et al., “Nutrition, immunological mechanisms and dietary immunomodulation in ADHD.” European Child & Adolescent Psychiatry (2014 Jul) 23:7, p. 519-29. doi: 10.1007/s00787-014-0522-2. https://www.ncbi.nlm.nih.gov/pubmed/24493267 

“Two Preservatives to Avoid” http://www.berkeleywellness.com/healthy-eating/food-safety/article/two-preservatives-avoid

“The ADHD Food Fix” by Sandy Newmark, M.D., https://www.additudemag.com/adhd-diet-for-kids-food-fix/

“ADHD Diets” WebMD http://www.webmd.com/add-adhd/guide/adhd-diets#1 

Bell, C.C. A Comparison of Daily Consumption of Artificial Dye-containing Foods by American Children and Adults.  (2013, March) Master’s Thesis Eastern Michigan University.   http://www.feingold.org/Research/PDFstudies/Bell2013-open.pdf 

Vojdani & Vojdani, “Immune reactivity to food coloring.” Alternative Therapies in Health and Medicine (2011) 21 Suppl, p. 1:52-62. https://www.ncbi.nlm.nih.gov/pubmed/25599186# 

Stevens, L.J. et al., “Amounts of artificial food dyes and added sugars in foods and sweets commonly consumed by children.” Clinical Pediatrics (2014 Apr 24), p. 1-13. Accessed 9 April 2017:  http://journals.sagepub.com/doi/abs/10.1177/0009922814530803?url_ver=Z39.88-2003&rfr_id=ori%3Arid%3Acrossref.org&rfr_dat=cr_pub%3Dpubmed& 

Published in Children
Monday, 28 November 2016 23:03

Brain Training for ADD & ADHD with Interactive Metronome

Did you know there is a brain training technique that is effective for improving movement and behavior patterns in people with ADHD that is also used by world-class athletes and military veterans? It’s called Interactive Metronome®.

Interactive Metronome is a treatment that can be used alone or in conjunction with other therapies for a variety of learning, behavior, and movement disorders.

The aim of Interactive Metronome (IM) is to restore essential brain pathways that are responsible for coordinated movement and timely processing of information—also called “temporal processing” or “neural timing.” Timing of movement, coordination, and rhythm are orchestrated through the brain and are crucial to daily tasks such as getting dressed, walking, writing, and basic thinking, organization and planning. Poor rhythm and timing is associated with difficulties in attention, motor coordination, balance and gait, language processing, and impulsivity. 

Developed in the 1990’s, Interactive Metronome has been shown to improve timing and coordination of movement in people with ADD/ADHD, Autism Spectrum and other behavior disorders. It has also been successful for those with impaired motor skills, dyslexia and other learning disorders, as well as movement disorders such as cerebral palsy.

What is Interactive Metronome Training Like For a Child? 

IM uses a game-like auditory and visual platform that engages a child and reinforces the target behavior/movement pattern with high-speed, easy-to-understand feedback. The technology challenges the child to synchronize movements to a precise computer-generated reference tone that they hear through headphones. The goal is to match the rhythmic beat of the tone with the behavior/movement pattern they are trying to learn.

Movements that are trained with IM can be as simple as hand and/or foot patterns, as well as complex motor movements that involve intricate decision-making.

Research on IM shows that the approach helps children with learning, behavior and developmental disorders:

  • Improve planning and sequencing
  • Improve focus and attention 
  • Improve motor control
  • Enhance mind-to-muscle communication 
  • Enhance their ability to focus for longer periods
  • Enhance their ability to filter out internal and external distractions

IM is a way to retrain the brain using interactive auditory and visual games or cues that kids respond to.

Is Interactive Metronome Treatment Right For My Child?

Compared to other therapies, IM is still considered a new approach in treatment. Clinical research is addressing questions such as how IM can be effective for different people and for different health conditions. No two people with the same illness or disorder experience it in the same way. This is why treatments for one person might not work as well for another person. Your child’s clinician is the best person to talk with about how Interactive Metronome may benefit your child. 

Learn more with these articles & videos:

  1. IM Training in sports (general overview), Learn More
  2. Research Studies with Outcomes Described for General Audience, Learn More
  3. Shaffer, R.J., Jocokes, L.E., et al., “Effect of Interactive Metronome Training on Children with ADHD” Amer Jnl Occupational Therapy (Mar/Apr 2001), 55:2, 155-162. Accessed Nov 14, 2016, Learn More 
  4. National Resource Center on ADHD, Learn More 
  5. Medical Citations on IM and ADHD, Learn More 
  6. Video Demo of IM, Watch Video 
  7. Interactive Metronome at Talcott Center for Child Development, Learn More
Published in Clinical

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